Well as day 7 draws to close it has been a positive day with some steps forward.
The main thing was that I managed to have one unit of blood as part of the transfusion and there was no reaction. So a real result 👍.
I must confess that the thought of a blood transfusion has made me a little, not quesy, but perhaps more mindful of what is going into me and where it has come from. I have had lots of medication in drips, infusions and injections but these are mostly, as far as I am aware made in a lab whereas the blood is very much donated. Very kindly donated I might add.
I also manage to get the CT Scan on my spine done although it is still to be reviewed by the neurosurgery team and so that means I am still confined to bed.
Getting out of bed is a major milestone and a step towards getting home and that all important next treatment. It also means that things like the catheter can be removed and I can confirm I can toilet normally.
I learnt a new abbreviation today, TWOC or Trial Without Catheter. So basically just normal toilet function.
I had to interupt the doctor to ask what TWOC meant, sometimes they forget they are talking code when they talk in front of patients, I know why they do it but they do need to involve and explain to us patients.
So there has been a fair bit of sitting around, which is most of my day, the blood transfusion took three hours where I had to sit fairly still to prevent the infusion pump going into alarm.
And I feel I have been waiting all day to hear about the CT Scan, that wait goes on!
The highlight of the day was of course a visit from Barbara who as well as bringing a tasty strawberry 🍓 tart also brought her smile and stories of home.
She also took the next couple of photos of the view and crackers they are too.
So spirits are high and I feel there has been positive movements today. It is unlikely that I will be discharged before Thursday or Friday now which ok as it means I will go home in a better state.
I don’t especially want to spent another weekend here as for the most part I would be in a bit of a limbo state. So fingers crossed 🤞.