4 Weeks Since Discharge 💪

Well it had been 4 weeks since I was discharged from hospital and for the most part I am feeling pretty good with no signs of infections or anything else that might put me back in.

Plenty of fluids in hospital.

As a reminder I have been in hospital 5 times since October with a total of nearly a month in hospital. And as soon as I was discharged I began to get ill again so 4 weeks out is a major milestone for me.

All that time in hospital and probably the steroids and other medication, have taken their toll on me and I have suffered from muscle wastage and feel weak. I cannot walk very far and soon get out of of breath.

I am slowly building myself back up and am trying to get my life back to normal.

We went out last night for dinner to celebrate my wifes, Barbara’s birthday, which was a treat for both of us.

And of course treatment, scans and appointments continue.

Waiting for a scan, you can also see my brace which I wear most of the time.

I have had my third Radium 223 treatment, almost 2 weeks ago at the time of writing.

Having a cannula fitted prior to Whole Body Bone Scan and third Radium treatment.

For me it is hard to tell how effective the Radium is, I don’t seem to have any side effects which is a result and am not suffering any extra bone pain.

I am having a series of scans which will help tell if the Radium is working and should get the results at my next Outpatients appointment.

My PSA has dropped a little to 1,572 from 1,678, so a change of around minus 100, which is good news. Not sure if this is down to the Radium or not as I was warned that the Radium could cause the PSA to rise.

One change on the medication front is that the maintenance dose of Dexamethasone that I am on has gone from 0.5mg to 2mg. Partly on my request as while I was in hospital being on the higher dose seemed to help.

Of course there is a trade off with steroids as they can cause muscle wastage and in my case keep me awake so my sleep is a little disrupted. But I think overall the higher dose is beneficial for me.

One of the key differences on being discharged this time is that I want to do things whereas previously I had just about managed to get up and lie on the sofa. And so I have been doing a number of projects that I had either previously started or had wanted to start.

One of the projects I have completed.

This is all helping with my rehabilitation and getting things back to normal.

And of course one of those normal things is writing this blog and I shall try and get back to writing about things as they happen or come into my mind.

I wish you all well ❤️.

Update 4 March

Today I am back at UCLH and sat in the Nuclear Medicine department.

Cannula and a smile

Two procedures to be done today.

The first is a Whole Body Bone Scan, I have just been injected with a radioactive trace which will take about 2 hours to work its way around my body and then it’s 30 minutes in the scanner.

The scan will show my Oncology team the state of my cancer.

The second procedure is an actual cancer treatment called Radium 223 which is injected via a cannula and only takes around 10 minutes.

The Radium attacks any cancer cells it may find in my bones.
So a very radioactive day today.

Overall I am feeling much better than I have over recent months and it’s been nearly 3 weeks since I was last discharged from hospital 🏥.

Let’s hope that continues.

All the stays in hospital and the problems I went in with have taken a toll but I am slowly building myself back up and am getting on with things.

I hope the photo captures how well I feel.