Well today has been a bit of a day with me being admitted into UCLH Hospital!
Not what I expected when I set off this morning for my Oncology Outpatients Appointment. I was expecting a review and an update on all the scans I had had and to find out about the Vision Trial.
I did find out about the Vision Trial and while I was accepted onto the trial, I had the right levels of PSMA, I had been randomised into the Control Group, not what I wanted to hear.
Being in the control group means I would get normal ‘Standard of Care’, which I would get treatment that is already in use and not something cutting edge.
For me this would mean Steroids, Dexamethasone most likely.
I know I am no expert on this but my gut feeling was that the Vision trial and Lutetium 177 was the way forward for me.
But for now there were other things to worry about.
As soon as we started talking about my leg pain and Polymyalgia then the concern was raised that it might be caused by Spinal Cord Compression, this is where cancer in the spine presses on the nerves running through the spine causes pain and weakness.
So the immediate thing to do was to get a MRI of the spine so it could be better reviewed.
I was also surprised to hear that thry were going to admit me into the hospital do they could keep a close eye on me.
I would also be immobilised and would have to stay flat on my back!
This meant I was lifted by 6 people from bed to bed and moved around the hospital by porters.
This was all a very big shock as I had travelled to the hospital and had been walking around. I also had expected to go home.
What was I going to wear!
There was some confusion……
I was moved to the 10th floor where the cancer ward is and moved onto another bed, where I spent the next few hours.
It turns out I should have been taken straight to Imaging for the MRI.
So it was about 7.30 when I finally went in for my MRI having been lifted another 2 times!In the meantime I had my first hospital dinner which was too bad 😁.
The MRI was 45 minutes of discomfort and loud noises, I was glad when it was over.
Barbara had been with me all through the day and had got me a small hospital survival kit.
I was sad when it was time for her to go and look forward to seeing her tomorrow.
Since returning to the ward I have been hooked up to a drip and given some Dexamethasone and some pain killers.
I lie here now in my hospital bed listening to the noises of the ward.
We I sleep I don’t know, the Dexamethasone might have other ideas and my mind is spinning but I need to give it a try.
Apologies for any typos, it’s been a bit of a day!