Well, it is 11.10 a.m. and my phone rings and indicates a private number, I suspect it is my Oncology Outpatients call that I am expecting which indeed it is.
And it is a doctor I have spoke to a few times especially over the last few weeks and he has the results of my MRI Scan of yesterday.
Not great news as he said that I have a displaced bone fragment that maybe pushing against the nerves/spinal cord hence the tingling in my toes. He said that this fragment is not stable and could move about and so I need to be very careful.
They have referred me to a spine surgeon who will review and see what if anything needs to be done.
On the downside they have said that I should wear my Spinal Brace once more for a period of 12 weeks and wear it for most things although I do not need to sleep in it.
They are expecting more information to come through during the course of the day and they will update me as they get further information.
They are going to email a list of “do’s and don’ts” to me with further guidance about what I should be doing. The good news is I can still walk and so can still take Teddy out for walks.
The MRI did not show any further information about cancer in the spine aside from what I already knew.
So now I am waiting for further information on what I can and cannot do in regard to my back and wearing the brace.
I have also had confirmation that my Lutetium Treatment, number 7 this will be, will be on the 19th at The London Clinic.
So right now it’s a quick trip into the attic to dig out the spinal brace and it’s freezing up there!!!
I had a follow up call with the doctor this afternoon who said that the MRI has been looked at in more detail and they feel certain that the Spinal Cord is not compromised which is good news.
There has also been feedback from the neurosurgery team who feel that surgery is not an option as there is too much damage from cancer and from cancer treatments like radiotherapy and the lutetium, to my spine which discounts surgery as an option.
What this does mean is that they now feel that the spinal brace is more of a long-term solution which is bad news for me, mainly because it becomes uncomfortable to wear after a number of hours and it also gets damp with sweat and perspiration which in itself is uncomfortable, so I have asked if it is possible to have one of a different type.
The one I have is made of fibreglass and fits tightly around my back and chest and I am very sure it does what it is supposed to do. I have seen spinal braces online that have a metal spine and neoprene straps to provide the support and so I would have thought that something like that might work for me, it provides the support but also allows my body to breathe and is more comfortable.
Obviously, I need to take advice on this, but it is definitely worth asking.
The other thing that came out of the call is that they want to do a CT scan to look at the integrity of the cement from the vertebroplasty procedure so I will be heading back to UCLH in the next week or so!