It’s always amazing how quickly appointments come round, no sooner am I discharged than I was booked in for my next Outpatients appointment. Which is of course a good thing, and I am very pleased that they are being proactive.
And this was an amazing visit if for no reason than we were in and out within an hour and that included a blood test.
Today I was seeing the Lead Consultant which is sometimes good and sometimes bad as it normally falls to him to deliver the tougher news.
But as he called my name, I could almost sense him smiling behind the mask he was wearing, and I think this was down to him seeing me in good shape.
He did comment that on Monday when they held the weekly MDT (a meeting where they review patients) (Multi-Disciplinary Team) that that they were worried about how I had been in hospital and whether I would be fit for treatment.
But he was pleased to see me walking around and moving well and I think he could tell I was well on the way to rebuilding my strength.
And so, the tone of the appointment changed to something much more positive and after a quick examination he was pleased to announce that I could go ahead with the Radium 223 treatment and that they would get it booked in and aim for Friday 26th November.
Barbara and I were both smiling and so relieved to hear the good news.
This was all subject to the blood test I was about to have and so we headed down for the test and was pleased to see that there was only five people in the queue.
Because of the effects of the Radium 223 the measurements that are important have changed.
Radium 223 works on the bone Mets and so is likely to cause a spike in PSA and so that becomes a less important measurement of success.
What does become important is the blood work which of course comes from the bone marrow and again the haemoglobin is at the forefront followed by Alkaline Phosphatase and then as always, my general health and response to treatment is looked at to see how I am doing.
And it is these things I will be monitoring myself and be keeping a keen eye on.
On the haemoglobin front it has actually gone up since I was last tested in hospital which is fantastic news. Not by much but from 112 to 117 in the week or so since I have discharged.
This might be down to two factors, the first that the blood transfusion was kicking in and secondly, I had been eating food which is good for your blood work. I had been on a menu of red meat, liver and bacon, oily fish and so on, every little helps.
On the downside my PSA was 1,129 which has gone up from around 860 while I was in hospital. This is hardly surprising as I am not really having any treatment at this time aside from Hormone Therapy.
At the time of writing I don’t have an up to date reading for Alkaline Phosphatase but at the start on November it was at 251 which is high and has been running high for sometime as per the graph and a few years ago was in the 700 to 800 range so it has come down alot.
So I am feeling pretty upbeat, I have had some good feedback about Radium 223 and am hopefull it will work well. As with all these treatments it does come with side effects, including diarrhoea, sickness and some bone pain and I will be doing all I can to mitigate those by going into this as fit as I can and will of course be staying as positive as I can.