Covid Vaccine Invite

Well I was busy doing something (or nothing 🤔) when my phone beeped indicating that I had just received a text message.  I don’t get many text messages anymore and so was curious as to who was texting me?

I checked my phone and was pleasantly surprised to see that it was a text message from my GP Surgery inviting me to have my Covid Vaccination.

There was a link to a website and I was able to select a date and time that suited me.

Nice and easy 👍.

So next Friday I will be off to the local football ground for my first vaccination. I will let you know how it goes.

PSMA PET Scan and Blood Test

A busy week this week, Prostap yesterday and now heading to London and UCLH For a PSMA PET Scan.

I arrived early and headed downstairs for a blood test which took about 20 minutes and then headed to the Radiography Department which was on the same floor.

The reason for this scan is that my PSA from a blood test at the start of January had gone up from around 90 to 150.  And the scan is to take a look inside and see if the cancer has spread or looking more pronounced.

Well what is a PSMA PET Scan?

Prostate-specific membrane antigen (PSMA) imaging is a nuclear medicine exam using positron emission tomography (PET) to detect prostate cancer. … PSMA PET is very sensitive for detecting prostate cancer, with accumulating evidence suggesting it is superior to conventional imaging tests such as CT scans or bone scans.

Basically I was injected with a radioactive trace that is attracted to Prostate Cancer calls via a cannula.

This is my arm with the cannula fitted, there is a flush fitted and inside the Orange case is the radioactive trace.

The orange case around the radioactive injection is made from metal like lead and protects the radiography staff from exposure to radiation.

Once the trace has been injected I had to wait about an hour for the trace to work it’s way round my body and so there was nothing to do but have a nap 😴!

The hour quickly passed and I was asked to change into a hospital gown.

And then it was my turn to be scanned.

I was asked to lay on the scanner bed which I did but it was painful to lie flat with my back and so a couple of pads were placed between my back and the bed. They helped a lot.

Once I was all set up on the bed a frame was put over my chest and head to help keep me still and the ‘panic button was put in my right hand.

And then the bed was slid into the drum of the scanner, it seemed quite a long way in!

And then the scanner started up, it is very similar to a MRI with lots of noise as the scanner spins around.

The scan takes about 30 minutes and I was moved in and out of the scanner as different parts of my body were scanned.

I was then asked to go to the bathroom and empty my bladder which I duly did.

And then it was back in the scanner for a few more minutes while they scanned the area around my pelvis.

Once the scan was done I was able to get dressed and make my way home. Like all radiation treatments I have to avoid being too close to people and especially young children to prevent them being exposed to the radiation.

That said I did give Teddy a big hug when I got home.

I just have to wait a week now for my results 🤞.

Prostap No 15

Well it’s a Monday morning and there is snow on the ground and ice on the roads and I have to head to the GP’s surgery for my 15th Prostap Injection.

While there was ice on the road outside our house once I got onto the bigger roads the ice was gone and the journey was much easier.

Hence I arrived at the surgery early and I knew they were not keen to let people in early so I spent a few minutes in the car waiting.

Closer to my appointment time I made my way to the surgery. They have a video camera doirbell at the door and so you are screened before they let you enter the surgery.

Once inside it was only a short wait until the nurse called for me. It was the same nurse who had done my last injection and she had recorded which side she had administered the injection and so she would be injecting my on the right side of my stomach.

The needle was quickly inserted and the injection was done and it was time to head home.

I do tend to suffer from more hot flushes for a week or so after the injection but then it settles down a bit.

Only 12 weeks until the next one!

Outpatients and Zoledronic Acid 6 Jan 2021

Back to London again today for my Oncology Outpatients Appointment and Zoledronic Acid infusion.

The good news is that my Covid test came back negative so I am all clear for treatment and pleased to be Covid free.

The bad news is that my PSA has risen to 150 from 85 about 6 weeks ago. And so it looks like my PSA is starting that upward move again after being brought down by the Lutetium. Overall I am feeling pretty well aside from pain in my back from the fracture I had.

I was pretty disappointed that my PSA had risen so much in a fairly short time, it would seem that the effects of the Lutetium have worn off.

So the plan now is to have a PSMA PET scan and have a look at what is happening inside with a view to rechallenging the cancer with more Lutetium.

I have two Lutetium treatments left that I could have and although we are entering very much into new territory with the Lutetium it is thought it is better to rechallenge sooner rather than later. Well at least the first one and then see when to use the second one.

I did ask about what might be done after the Lutetium treatment has been used and the answer was that it would be another clinical trial. The clinical trial mentioned was called BiTE, I think and here is a brief descriprion of it.

“a PSMA bispecific T-cell engager (BiTE®) immune therapy mediating T-cell killing of tumor cells in patients with advanced castration-resistant prostate cancer”

If I understand it, it is similar to Lutetium in that it consists of two parts, the first part is attracted to the cancer cells expressing PSMA and instead of using Lutetium to kill the cancer cells it attracts the bodies own T-Cells to attack the cancer cell.
I think I have a bit more to learn about this and will certainly be asking more questions next time around!

Not surprisingly by the time I got upstairs for the Zoledronic Acid Infusion my blood pressure was fairly high at 166/98 so they gave me a few minutes to relax. It also gave me time to think about what I had just been told downstairs and to calm my racing mind.

It’s all done wearing a mask

A few minutes later and I was at 145/80 and they were happy to continue with the infusion.

I had already been fitted with a cannula and while I hate to keep mentioning it, it did take 3 attempts to get the cannula in and its not the needle going in that stings, it’s the wiggling about of the needle that really stings!!!

Just waiting for the drip to be attached.

The Zoledronic Acid infusion itself took about 20 minutes and soon the cannula was being removed and I was told I could go.

Jacket on I made my way outside and made my way home.

By the time I got home I had my next outpatients appointment booked and that is scheduled for 3rd February and so hopefully I will have a PSMA PET scan before that, it could be a busy couple of weeks!

Covid Swab and Blood Test 4 Jan 2021

Up to London today for a Covid Swab Test and a Blood Test at UCLH

The reason for the Covid Test is that I am due back at the Hospital on Wednesday for an Outpatients Appointment following by Zoledronic Acid treatment and because of the treatment I need to have the Covid Test and so I thought I may as well have an up to date blood test at the same time so we can see how I am doing.

Given the Covid situation in London I listened to advice and took a car up to London, mostly to avoid the tube but also the train as well.

London was fairly quiet, there were cars around and some pedestrians but nothing like you would expect on the first day back after the Christmas Break.  There was a notable exception at Costco on the North Circular which had a long queue; people stocking up before the next lockdown I guess.

A fairly quiet Tottenham Court Road.

And so we arrived early for my booked time for the Covid Test.

The same as last time, the Covid tests were done in the Phlebotomy Department however there was a little confusion as when I arrived at reception I said I had a Covid Test and a Blood Test booked and was told to take a number on a paper ticket, there were 21 people in front of me so I found somewhere to sit.

It took about 45 minutes for my number to come up and in I went.  The phlebotomist listened to my advice to try a vein in my hand and was soon drawing blood.  It flowed well initially but started to dry up after a couple of the tubes were filled, I was also giving blood for research so there were additional tubes to be filled.  These last few proved a little troublesome and the phlebotomist wiggles the needle to try to improve the flow, it stung a little and I winced.

She apologised but i said there was no need, but it did sting!

And soon I was done only to find out that I needed a sticky label type sticker before I could have my Covid swab and so it was back to reception!

Fortunately I didn’t have to wait long before I was called again.  The nurse started to say that I was late for my slot.  I told him that I had been there since before my slot and that I had been misdirected.  He gave a knowing shrug and took the swab.

So now it is waiting time, hopefully I will get the Covid result tomorrow and find out about my PSA and bloods on Wednesday.  Hopefully the PSA will be stable and the rest OK.

I look forward to finding out on Wednesday.