Can I Cope With This Much Excitement?

All this excitement two days in a row.

Today I have been out for a blood test at The Rivers hospital in Sawbridgeworth so a longer drive than yesterday and a pleasant drive it was to. The roads were pretty clear and it took no time to get to the hospital.

Once again I masked up and with my gloves on I made my way to reception. They were practicing social distancing with markings on the floor to help us with social distancing.

I was directed to the blood test waiting area where they were three people waiting. We looked at each other over our masks, it was a little strange just seeing people’s eyes.

I waited about 10 minutes before being called forward.

The nurse was experienced but it still took her two goes to get the needle into the vein.

And then it was over, my blood will be sent to Princess Alexandra Hospital in Harlow and the results will be sent to the GP. I will be hoping for healthy results across the board and especially anything to do with bone marrow function which helps with immunity and the production of white blood cells. And of course I will be looking for a reduction in my PSA, I would love to be back in double figures but cannot imagine it will come down that much.

Last time it was at 144 which is great as it was at 1,585 before I started the Lutetium treatment.

The drive home was pleasant, I was so tempted to go to the supermarket or something but managed to resist!

Now it’s a waiting game for the results.

Oncology Outpatients next Wednesday via a telephone call and then Lutetium treatment on Friday.

Oh that’s a day trip to London 😉.

An Exciting Trip Out

Well today as been full of excitement, well not really that exciting but exciting for me.

I have been out of the house today and visited the GP in Thorley for my three monthly Hormone Injection.

It was good to get out and see a small part of the world.  It was also good to get behind the wheel of the car and do a bit of driving.  They have resurfaced the main road through the village which we had seen from our house but hadn’t driven down, looks like they have done a good job and now all the potholes have gone.

I arrived at the Surgery with my mask and gloves on and like last time I needed to ring the doorbell to be let in.

I actually feel this system works much better as there was no waiting around and I was straight in to see the nurse.  Although I guess less people are going to the surgery and that is why it is more efficient but I am sure there are lessons to be learnt!

The nurse was very good as well as quick and efficient, the injection is done with a big needle and I never felt a thing which is always a good result.

And before I knew it I was off home, I made the most of the drive and went through town to have a look around.  The roads were quiet and driving was a pleasure but I can’t see that lasting!

Soon I was home and looking forward to my next adventure which is tomorrow when I go out for a blood test!

 

Next Lutetium Treatment

My next Lutetium Treatment is scheduled for the 5th of June and is due to take place at the London Clinic.

This afternoon I have had a phone call from one of the radiology team to tell me that they have updated their Therapy Pathway and that I needed to go into isolation for 14 days prior to the treatment!

Fortunately I am already in isolation and so this should be no big issue.

She said that I would need to have a Covid 19 test done 48 hours prior to treatment.

Which again shouldn’t really be a problem!

She then asked about when my last blood test was and when the next one would be. Luckily I had just been sorting this out (see my post ‘A Right Palaver‘).

And so I told her.

She said she would write to my Oncology Consultants and ask them to write to my GP to ask them to do the Covid test.

This all sounds simple but you can see where this is going!

She said she would copy me in on the email to the consultants so I would be kept in the loop.

She then recapped what I needed to do.

I then asked a question and as the words came out of my mouth I was regretting it.

I said that I could stay in isolation but would need to go out for the Covid test.

There was silence!

I could hear the brain whirring as this was worked out! Clearly a new problem had been presented.

And so she uttered those words.

‘I will call you back!’

And so now I wait to hear how the GP’s Surgery will handle the Covid test request when they get it and I wait to hear how The London Clinic think Covid testing can be done while staying isolated?

Watch this space!

A Right Palaver

So two simple things need to happen, I need my three monthly hormone injection and I need to have a blood test in time for my next Oncology Outpatients Appointment on the 3rd June.

It would make sense to have them both at same time and have them both done by the GP’s Surgery. After all I normally have my Hormone Injection done by them and I had recently had a blood test done at the surgery.

So last week I started making enquiries about getting this done.

First of all I had to convince them that this was the best plan!

Then they couldn’t access the nurses diaries as they only release appointments 2 weeks in advance.

The person I was speaking to said she would speak to the practice manager and get back to me.

And true to her word she called me back and said that the practice manager had said that I should be referred to the District Nurses who would come to my house and do both the Hormone Injection and the Blood Test.

What a result I thought, I was happy with this outcome.

A few days passed and then I got a call from one of the District Nurses who asked if I was housebound. I said I was as I was classed as Extremely Vulnerable. She asked if I was housebound prior to the virus and I said no.

She said then I wasn’t technically housebound and that they couldn’t visit and I would be referred back to the GP.

Great?

So I messaged the surgery who got back to me the next day, it was the same person that I had previously spoken too!

We discussed the problem and she tried to book me in. She managed to book me in for the hormone injection but couldn’t access the calendar for booking the blood test.

She would call me back!

And she did, to tell me there were no available slots for blood tests and so I would need to go to The Rivers Hospital and have a blood test done there!

The surgery would post me a blood test form to take with me.

I was straight on the phone to The Rivers and managed to get booked in.

So I now have my Hormone Injection on the 27th and the Blood Test on the 28th! One woth the GP and one at The Rivers!

What should have been fairly simple seemed to become very complicated. It’s a good job I am pretty robust and can work through these situations but I can see a lot of people finding this very stressful.

I feel more needs to be done to make these things simpler and less of a palaver!

Fingers crossed🤞

Oncology Outpatients 6 May

Today I had my monthly Oncology Outpatients Appointment which thankfully was done by phone call and saved me travelling to UCLH in London.

I had had my blood test done on the 29th of April and already new that my PSA had come down to 144 from the previous level of 169 and the high of 1,585.  And so I was happy that everything was moving in the right direction although it had slowed down.

The call was with a doctor I hadn’t previously seen or spoken to but he had been through my records and I had been discussed at the MDT (Multi Discipline Team) meeting on Monday.

We went through my PSA result and how I was feeling.

I was actually feeling pretty good, no side effects from the Lutetium that I was aware of, no cancer related problems that I was aware of and just back pain from my fracture last year.  I relayed all of this to him.

We then discussed treatment and agreed that my next Lutetium treatment should take place on or around the 5th of June but ultimately it would come down to the Radiation Oncologist to decide.

We agreed that my next outpatients appointment would be on the 3rd June just before the treatment and I am also due to have my 3 monthly hormone injection on the 1st of June and I needed to get that booked in, and if I can I should get a blood test the same time ready for the outpatients appointment.

So a few things to get organised!

Overall I feel that doing the outpatients appointments by phone call works well and something I would like to see continue once the Corona Virus restrictions are lifted.  It is nice to see the doctor and build a rapport with them and you can discuss more with them and so it would be good to see them at least every three months.  Of course if my health were to change I would want to be going to see them so they can better see and examine me.

Video calls would be better as well so we can see who we are talking to, the call Barbara had with her oncologist was a video call and worked well.  But it would seem that UCLH prefer phone calls.

What next?  I need to get my 3 monthly injection organised and the treatment on the 5th of June confirmed.