Back at UCLH once more for my 4th cycle of chemo but also for a review of my PSA.
I do feel a little apprehensive about what I might hear although I am also hoping for good news that my PSA has gone down and that it looks like the chemo is starting to work.
We had a later appointment today so I was there about 12 for my 1 o’clock appointment.
I was seen soon after 1pm which was good.
As soon as I saw the doctor I ask what my PSA was and he answered in a vague way stating it was in the three hundreds, I asked if he could be more precise? He had to go away and find the information.
When he returned he said my PSA was 398, up from 298 3 weeks ago and from 61 back in January. For me this is not good news although he seemed unconcerned about it.
I see this as a ticking time bomb, while I am fit and well at the moment something is obviously going on inside me and I feel I need to get on top of it before it gets too far gone.
It also seems to indicate that the Cabazitaxel is not working or doing what it should be doing.
I do wonder if one of the reason I am having a fairly smooth ride with the Cabazitaxel is because it is not doing anything and is not having enough impact on my body.
The appointment was fairly brief and the doctor said he would book me in for a CT Scan and a Bone Scan so we can see if there is any disease progression. So I will have to wait for these to come through now.
After the appointment we checked in with the chemo ward and had a chat with Bec’s who runs the team, we said we would go for some lunch and asked her if she would like a coffee, which she would, always good to keep people sweet 😉
After lunch we return to the chemo ward, Barbara was desperate to get going with a jigsaw.
Time passed and jigsaw one was done.
Mid way through number 2 I had my cannula fitted, the cannula was fitted into my forearm which was a first for me.
I was given the pre-meds and then before too long I was hooked up to the Cabazitaxel.
We spent the time finishing the second jigsaw and Barbara started a third!!!
I was starting to feel tired by the time we finished, a combination of the chemo and a long day I think.
We left the hospital just after 7pm and headed for the tube so we could get home.
How do you keep a positive mindset when you are feeling apprehensive, I feel I am always waiting for the next appointment. The worry does affect my sleeping but in the daytime there are lots of distractions and I could always get hold of myself and say “get a grip!”
So now I wait to hear when the scan will happen, soon I hope.