Hope

Today one of my neighbours that I know from the allotment popped by while I was out walking Teddy with a note with the details of someone she thought could help me.

She has Pancreatic cancer I believe and just had Proton Beam Therapy (although the doctor called it nanoknife).

Her note had the phone number for Professor Leen at the Princess Grace Hospital. She told Barbara that he had said he could help with my case.

Apparently she had raised it with Prefessor Leen. I can’t thank her enough for taken the time to rise it.

So with nothing to lose I decided to text Professor Leen.

While I was down the allotment my phone went and it was Professor Leen.

We had a chat about my condition but the conclusion was that he could not help me as my cancer was to spread over my body.

During the chat he referred to nanoknife which is something I had not heard of before so I need to research that a bit.

Homeward Bound

Finally heading home after what has been a long day so far with lots of waiting around.

Dr Linch wasn’t available today as he was at a meeting so we saw one of his colleagues Dr Bihani Kularatne who I have not seen before.

We didn’t get the expected update on the Neptune trial that I was waiting on as my biopsy was not sent off until 26th April. Hope the results will be available for the next visit on the 6th June.

As mentioned my next appointment is on the 6th June at 1230 due to me being on holiday the week after.

I had my blood pressure done which a bit high 155 over 99, this was the third one with the first being 170 over 106. Not sure why it was high, perhaps due to anxiety around the Neptune trial.

I also saw Janet one of the CNS at the hospital and we had a chat around my nocturia or peeling too much at night. She thought that maybe I don’t need to be on some of the tablets I am on as the hormones will be having an effect on my Prostate. She will refer me to their urology department for for tests.

Despite having a blood test done at 0800 this morning the results were not ready so I never got an update on my PSA. Hope someone will phone me with an update.

On the plus side we learnt that I can have blood tests in the Herts and Essex which will save on the early morning. I just need to have it a couple of days before each appointment.

We discussed my backache and concluded that it was a little soon after my Radiotherapy and we should give it more time.

A slightly chaotic feel to the Appointment today with the oncologist popping in and out, the CNS coming in and a nurse coming in twice, once for blood pressure and then a quick glucose test which included pricking my finger.

The glucose test came back as 6.7 and the normal range is 4 to 7.0. So everything should be ok there.

I also picked up an 8 week supply of Metformin and 4 weeks of Enzalutimde.

So back in three weeks, hopefully for a more productive meeting.

Delays

Just arrived at the UCLH Macmillan Cancer Centre for my 1150 appointment to find that Dr Linch’s clinic is running at least 45 minutes late.

I wonder why it is always running late and how they can improve on it and so improve the the Patient Experience?

First Post

I am starting this a little late in the story as I have been diagnosed with Prostate Cancer for about 18 months now.

It is something I have been thinking of for a while but hadn’t quite got around to.

I will try and write about current adventures and also write retrospectively to fill in the gaps.

As I write this I am sat in Patisserie Valerie on Torrington Place close to UCLH (University College London Hospital) where I am due to go for my monthly oncology appointment.

Blood Test

Arrived early today for a Blood test at UCLH.

Needed to be here early so that the results could be ready for my 1150 appointment. According to to the nurse it takes 15 mins for blood count test to be done and 4 hours for PSA and other info to be done.

Prostap Injection

Another Prostap Injection today with Bonnie at Church Street Surgery at the Herts and Essex Hospital. As always the injection was in my stomach, left side this time.

I am becoming a bit of a wimp where needles are concerned.

Instead of becoming used to them I seem to be getting more sensitive to needles.

All in my mind I think!!

Bonnie was very good, as always.

Next injection should be on 7th August 2018.